Around the 8th I got a blood transfusion because my hematocrit and hemoglobin were so low. I needed 2 units of blood, just to help bring things back up out of the danger zone. The transfusion took 5 hours, about 2 hours for each unit of blood. I was tired that day and the day after, but after that, I felt much better. I’m still tired most days, and going out for appointments wipes me out.
I had another paracentesis today, had about 3.6 L drained from over the last week. I am planning on going to a hotel with my husband for a few days. What I really feel like I really need is a good soak in a hot tub or Jacuzzi. I have just have a need float in water and relax.
A friend of mine has talked about “Spoon Theory”. Have you heard of it? Its a theory about how much time or energy a person with limited energy reserves can portion their day, based on what they think they can accomplish.
I’ve had days where it can take me 5 minutes to get up to use the restroom, starting from the thought of “I need to use the restroom”.
It’s now been about a week since I was finally released from the hospital. The first few days home I was feeling very good, had good energy, etc. I think I pushed myself a bit too hard and wore myself out. I’m in the middle of a major immune low at this point. My white cells (and red cells) are very low. I’m taking all kinds of supplements to try to boost my immune system and to help my body fight off the cancer.
It’s hard to believe that at the end of February I was feeling very good. Over the next month, I would spend about 3 weeks in the hospital. For now, I’ve been cooped up in my bedroom, getting rest, and trying to do stretches, to strengthen my legs. I can get up and walk around (to the bathroom, shower, etc) but it’s exhausting, and I definitely need help getting out.
In the hospital, I had my belly drained several times, each time removing between 3 and 4 liters of fluid each time. Once I got home I was able to make it about a week (instead of 3 days) before needing to be drained again.
I’m sitting here writing this, around 11pm on 12/31. It has been quite a year, with the journey really starting in July 2018.
I’ve been taking Transfer Factor Plus (TF) for most of my time in chemo and treatment. I can see from my CBC blood tests that the TF has been a good addition to my treatment. It didn’t always bring my white cell counts up above the low-normal line, but it did keep it from going too low. I do know that when I talked to my oncologist about it she said that almost all the people who were taking Talzenna had to have dose reductions because of their white cell counts going too low. I did not have that problem at all. I do intend to continue taking the TF as it supports my immune system. TFs are an immune modulator, which is to say that it can either boost or suppress the immune system as necessary. Chemo is toxic by nature and really hard on the immune system. It is wise to do everything possible to safely boost your immune system so that you stay healthy.
I’m happy to still be here, doing well, and being relatively healthy despite my cancer diagnosis. My oncologist is equally pleased with my health, all things considered. She is quite surprised and pleased that I don’t have any of the common complaints that people on chemo have. I am not fatigued (despite caring for 4 children), I have a good appetite, and am basically in good health (not sick).
I have had ups and downs in my treatment, however. Some of the treatments have worked better than others, namely the chemo. The more targeted therapies have been more hit-and-miss as to their effectiveness.
I am looking forward to 2020 and the healing that I will receive in Jesus’ name!
I do need to mention that I do sell this product, and I do believe in it. My sales link can be found here
So, I have a PET Scan coming up on Dec. 23rd. I’m not worried about it, I just want to see what kind of progress has been made with reducing the cancer in my body. It is much easier to get an idea of what is going on with my axillary lymph nodes (ones in my armpit) because I can actually feel them. Figuring out what is going on in my liver is just a guess, no good way to tell until the PET Scan. I’m really enjoying all the low-carb, high-fat foods I get to eat. I don’t really feel “deprived” in any way. Yes, I do miss things sometimes, but I’d much rather stay healthy. I do know that I can have a bit of carby things every rare once-in-a-while.
So, I had a bit of a cold for a while and my glucose numbers were registering higher than normal. I’m thinking that maybe the sensor had an error and was just reading high. Even after I was feeling better my readings were on the high side, and then dropped dramatically once the new sensor was started. When I stopped the previous sensor my glucose reading was 99 (high for me) and when I took my first reading an hour later (on the new sensor) it was 75. That’s a big change. It also stayed in the lower range for the most part, with an exception for the next morning where it was reading high, but then came back down into normal.
So, October is Breast Cancer Awareness Month. Did you know that for just about every day of the year there is some sort of special day? It can get so overwhelming with every month and every day being something special. For me, there are few important awareness months. Breast Cancer Awareness month is one of them. I was happy to find out that a local, small-chain, coffee shop was donating all their proceeds from today to a local hospital-based breast health clinic.
I made a point of stopping by today and was pleased to actually see a line at the shop. Usually, when I go there I see no line. If you have a Human Bean near you, I encourage you to go there and check them out. One of my favorite things about them is that they have a great selection of sugar-free (SF) flavorings for their drinks. I don’t even need to add any kind of alternate sweetener to my drink to make it taste good! My favorite is the SF Black cherry. My children like the SF Strawberry and SF Peach.