Home – Part 2

Around the 8th I got a blood transfusion because my hematocrit and hemoglobin were so low. I needed 2 units of blood, just to help bring things back up out of the danger zone. The transfusion took 5 hours, about 2 hours for each unit of blood. I was tired that day and the day after, but after that, I felt much better. I’m still tired most days, and going out for appointments wipes me out.

I had another paracentesis today, had about 3.6 L drained from over the last week. I am planning on going to a hotel with my husband for a few days. What I really feel like I really need is a good soak in a hot tub or Jacuzzi. I have just have a need float in water and relax.

A friend of mine has talked about “Spoon Theory”. Have you heard of it?
Its a theory about how much time or energy a person with limited energy reserves can portion their day, based on what they think they can accomplish.

I’ve had days where it can take me 5 minutes to get up to use the restroom, starting from the thought of “I need to use the restroom”.

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2 thoughts on “Home – Part 2”

  1. I love the spoon theory. It was first shared with me when I was diagnosed with CMV/EBV. Some days, it feels like you were not given enough spoon to go to the bathroom! I hope that soaking and resting will give you more spoons. Love you, my friend!

  2. Praying for your strength to return. A few days at a hotel will be nice. Hopefully, they will have a tub you can soak in.. Baths are a wonderful way to relax. Sending you lots of healing thoughts and prayers.

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