So, the results from the PET scan are in and the cancer is still growing overall. There were a few small areas of improvement, but overall there is growth or a few new spots of activity.
The plan is to finish the next 3 days on Talzenna and then give me a one week break from any medication before starting the new chemo regimen. This will be a 2-weeks on, 1 week off, for 3 cycles. According to my oncologist, I shouldn’t lose my hair, which will be nice for my kids.
When compared to the original PET scan the current one (#6) isn’t nearly as bad, but when compared to PET scan #5 there is definitely significant growth. Again, as a reminder, the kidneys and bladder are supposed to light up on PET scans, as they are filtering the radioactive sugar isotope that is injected. My oncologists hope is that the new chemo will be effective, but its just a guess as to if it will do enough in my case. She’s concerned, and rightly so, about the growth, but we are not in a panic yet. We still have the “heavy gun” chemo set in reserve, in case things get really bad. We are just going to keep monitoring things and keep trying different avenues of treatment to find out what will work the best to kill of the cancer. What concerns her the most is the increased activity of cancer in my liver. We may later do a biopsy again, depending on how things look, to see if the tumors mutated again in such a way to have another method of targeting them. For now, we just choose a weapon and attack and scan. Rinse, wash, repeat.
PET Scan #1 PET Scan #5 PET Scan #6
July 2018 July 2019 Sept 2019
I asked her about the reason for why she thought that my white cells were so low, given that I was taking the Transfer Factor. She said that Talzenna (started taking mid July) normally causes white cells to go very low, and can cause low neutrophils (neutropenia). She commonly sees that in patients. The fact that I did not have those problems, even though my white cell count did go below normal, she attributes to the Transfer Factor.